Useful Videos

Fifty Percent
A family’s journey with Huntington’s disease, discussing the decision to get tested, the impact of the diagnosis, and the importance of living well.
Do You Really Want To Know?
A documentary about three North American families who have been confronted with the emotional dilemma of being tested or not for Huntington’s disease.
Twitch Documentary
A documentary by Kristen Powers that highlights her testing process for Huntington’s disease.
The Inheritance
Discovering that she has not escaped the family inheritance, Bridget embarks on a journey to honour her mother and find hope for her child.
Dancing at the Vatican
An uplifting, heartwarming documentary charting the journey made by some incredibly brave families from Latin America.
What is Huntington’s Disease
Brightwater Care Group share their vision in creating a new home that is purpose-built to the needs of people with Huntington’s disease.

Huntington’s Australia National Conference 2026

Dr Kelly Atkins discusses the Map-HD Registry, exploring how and where people are receiving HD care, and the importance of the national HD prevalence study.

Professor Clement Loy summarises recent clinical trial outcomes in HD, key lessons learned and future research directions, while emphasising the growing sense of hope within the HD community. 

Insights from Skyhawk Therapeutics and Roche on the clinical trials exploring disease-modifying strategies for people impacted by HD.