Become a member

Be a part of a supportive network and have the opportunity to connect, contribute, and help shape the future of support for people impacted by Huntington’s disease.

At Huntington’s Australia, our members are the backbone of our organisation. The more members we have, the better we can understand and serve the needs of the Huntington’s community. Our membership year runs from October to September; however, we warmly welcome new members to the organisation at any time.

Huntington’s Australia was established through the support, involvement, and endorsement of five state-registered incorporated associations, whose objectives and values were aligned. It is through the founding of these state entities, forged by community members in the early 1970s, that both membership in and community connection to the organisations have grown and strengthened.

Who can become a member of Huntington’s Australia?

We welcome all people to join us. Our members include people with Huntington’s disease (HD), carers, family members and friends. We also have health professionals and supporters in our community who believe in our mission.

What are the benefits of becoming a member?

There are many reasons to become a member of Huntington’s Australia, including supporting an organisation that supports people with HD to live better lives. As a member, you’ll be able to:

  • Receive invitations to attend Annual General Meetings and other scheduled formal events (such as Walk 4 Hope and Light It Up 4 HD)
  • Vote at the Annual General Meeting or Special General Meetings on changes put forward by the board of directors
  • Nominate to hold a formal role in the organisation (such as a Board member)
  • Advocate for and be involved in an organisation that supports people with Huntington’s disease.

What are your responsibilities as a member of Huntington’s Australia?

As a member, you hold the following responsibilities:

  • support the purpose(s) of the Huntington’s Australia;
  • agree to comply with, and be bound by, the Constitution, including paying the guarantee ($10) if required (see clause 3 & 4); and
  • agree to pay the membership fee (if any)

Membership fees differ depending on your age, how many years you’ve been a member, and whether you’re joining as an organisation or individual.

How much does it cost to become a member of Huntington’s Australia?

To ensure that everyone in the HD community could access support and resources without financial barriers during our foundational years, the Board decided to waive annual HA membership fees from 2023 – 2025.

However, looking forward, we are now asking for your support. For the 2026 – 2027 membership year, the fees are:

  • Ordinary Membership – $22 per year
  • Youth Membership (under 18 years old) – free
  • Organisational Membership – $100 per year
  • Life Membership (awarded through nomination or after 10 years of membership) – free

Thanks to our members and community, we can build a stronger, more supportive future for everyone impacted by Huntington’s disease. Your involvement—whether through membership, donations, volunteering, or advocacy—ensures we can continue to provide vital services and offer support.

How do I join?

Interested in becoming a member of Huntington’s Australia? Thank you. Simply fill in the Expression of Interest (EOI) form to get started. In doing so, you share your support for Huntington’s Australia and the Huntington’s community we exist to serve.

To become a member, click here to fill in your application.

Already a member and want to renew your membership?

Thanks for your support. If you’re already a member of Huntington’s Australia and want to renew your membership, click here to fill in your renewal.

Membership renewals are due annually in September. Our membership is valid from October to September each year.

Thank you for your support

Our organisation wouldn’t exist without our members, and we thank you for your contribution. For any questions about membership, email admin@huntingtonsaustralia.au.

Our constitution

Huntington’s Australia abides by a constitution of rules set out and voted upon by members and directors of the organisation. This important document guides the Association’s activities and focusses on a Board level and is fundamental to our operation and direction.