HD Services

Tailored support and services

Comprehensive support for people impacted by Huntington’s disease, their families, and carers, including counselling, education, skill development, and tailored behavioural support.

All NDIS services are priced in line with the current NDIS Price Guide.

A group therapy session taking place indoors with an attentive counselor guiding the discussion.
HD Specialist Services – Huntington’s Australia

General Support and Information

Free
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Free, personalised support for individuals and families impacted by Huntington’s disease, available across Australia, including rural and remote areas. Our experienced team helps you navigate systems like NDIS, health, and aged care, and provide guidance tailored to your unique needs.

This free service is available in person or online.

Counselling

NDIS Fee-for-Service
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Specialised counselling is available for individuals, families, and carers affected by Huntington’s disease. Our sessions provide a supportive space to address the emotional and psychological challenges that accompany the condition.

Our counsellors can help you:

  • Come to terms with a Huntington’s disease diagnosis, both as an individual and as a family
  • Understand your condition and what to expect throughout the journey
  • Navigate changes to identity, roles, and relationships as circumstances evolve
  • Build awareness around the choices available to you and what can be controlled
  • Receive psychological support through the roller coaster of emotions associated with grief and loss
  • Prepare for life changes and significant transitions
  • Improve engagement with services and supports
This service is available through your NDIS plan or on a fee-for-service basis, in person or online.

Social Work

NDIS
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NDIS-registered social workers provide comprehensive assessments and develop tailored support plans to address your individual needs. They can assist you in the following ways:

  • Offer practical assistance to help you maintain independence and quality of life
  • Support you through significant life transitions, including moving out of the workforce and adjusting to a new chapter of life
  • Assist in sensitive situations where a person may be unaware that their capacity for decision-making has become compromised
  • Empower you to advocate for yourself across important areas such as financial matters, legal issues, and housing
  • Advocate directly on your behalf when needed
  • Help you navigate complex systems including legal services, financial planning, and essential services like Centrelink
  • Connect you with community resources and mainstream services for ongoing support
  • Guide you through NDIS processes when a Support Coordinator has not been allocated to your plan
This service is available through your NDIS plan.

Education & Training

NDIS Fee-for-Service
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We provide tailored education and training to increase knowledge and skills for anyone supporting a person with Huntington’s disease. Sessions are designed to improve care, manage challenges, and prepare families and professionals with practical strategies.

  • Client-specific training — For carers, support staff, and allied health professionals. Focuses on understanding HD, managing behaviours, and optimising care.
  • General HD education — Learn about the disease, treatments, symptom management, and impacts. Suitable for any group size.
This service is available through your NDIS plan or on a fee-for-service basis, in person or online, with no limit on the number of attendees.

Skills Development & Coaching

NDIS
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Supports independence and engagement with community and healthcare. Staff provide consistent, trusted guidance to build skills effectively.

This service is available through your NDIS plan and can only be delivered in person.

Specialist Behavioural Intervention Supports

NDIS (QLD/NSW)
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Intensive support for significantly harmful or persistent behaviours. Includes a tailored Behaviour Support Plan with positive strategies for participants, families, and support persons.

This service is available in QLD and NSW through your NDIS plan.

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