Advocate with us
Huntington’s Australia is advocating for funding that will expand specialist HD services, increase funding for education and awareness and enhance mental health support to improve the lives of people impacted by Huntington’s disease.
The Reality of Huntington’s disease in Australia
8 to 10
per 100,000 are diagnosed with HD in Australia.
1,066
people with HD are currently on the NDIS
24%
of people with disabilities in regional and remote areas lack adequate care due to limited services
2,500
Australians live with HD
19%
of people with disabilities are impacted by isolation, a key risk to suicide
Our three core funding asks are:
Expand specialist HD services
Increase access to expert care across Australia, particularly in regional and remote areas.
Increase funding for education and awareness
Improve knowledge and understanding of HD among healthcare providers and the community.
Enhance mental health support
Expand non-clinical counselling that supports, assists and enables clients and carers.