The Hidden World of Huntington’s Disease finds its new home
The Hidden World of Huntington’s Disease has reached its latest destination – a very special café and gallery in Bathurst.
Social enterprise VIVA Café is run by not-for-profit charity and disability service provider Vivability and is currently hosting the powerful exhibit at its on-site Gallery VIVA. The gallery supports artists living with disability, giving them a platform to showcase and sell their art, and it’s currently home to the photovoice exhibition.
Learn more about VIVA Café and Gallery VIVA, the Hidden World of Huntington’s Disease, and how to view this amazing project.
What is the Hidden World of Huntington’s Disease?
The Hidden World of Huntington’s Disease is a national photography exhibition including a collection of photographs and stories from over 120 people with lived experience of HD. The powerful photovoice project was launched by Dr Travis Cruickshank, Ms Melanie Clark, and Mrs Cassandra Barnes from Edith Cowan University, with contributions and support from Huntington’s Australia, and is now being shown globally.
Huntington’s disease has a prevalence of 8.9 people per 100,000. Although rare, the impact of HD is significant. Through this exhibition, people affected by Huntington’s can tell their story in their own words and through their own photos, raising awareness and understanding.
Currently showing at Café VIVA, Hidden World of Huntington’s Disease is already receiving amazing feedback:
“I didn’t know a lot about Huntington’s disease before seeing the exhibition, and I had no idea it was a genetic condition or that there is currently no cure. The images really stayed with me and made me want to go away and learn more. I think that’s what makes an exhibition like this so important. It starts conversations and raises awareness about a condition many of us may not otherwise know much about.”
– Cafe VIVA Patron.
Sharing the Hidden World of Huntington’s Disease
You can currently view the Hidden World of Huntington’s Disease at Gallery VIVA, located within VIVA Café in Bathurst, NSW. The café provides meaningful opportunities for people living with disability, allowing them to engage in purposeful employment in an inclusive and positive working environment, and serves locally sourced–and delicious–food and beverages.
Some of the friendly team at Cafe VIVA in Bathurst, NSW
The exhibition appeared earlier this year at the AREA4HD International Festival in Florence, Italy, and will also be shown at the European Huntington’s Disease Network (EHDN) Conference in Poland. We’ll be sure to update you with any new exhibition locations as they’re announced.
If you’re an Australian café, gallery or other space interested in showing the Hidden World of Huntington’s Disease exhibition, we’d love to hear from you. Get in touch with Huntington’s Australia at admin@huntingtonsaustralia.au to discuss.
