Have Your Say in July

We want to hear from you!

Our 2025 Community Survey is happening in July — and it’s your chance to tell us what matters most to you, your family, and your community.

At Huntington’s Australia, we believe that real impact starts with listening. Your feedback will guide our work over the next year and help us better support people impacted by Huntington’s disease. Whether it’s improving the services we provide, strengthening our advocacy efforts, or focusing our communications on what you need most, your voice makes a difference.

This survey is open to everyone connected to the Huntington’s community — including people living with HD, family members, carers, support workers, clinicians, researchers
and advocates. It’s completely anonymous and takes a few minutes to complete.

What’s working well? Where can we do better? What issues are most important to you in 2025? Tell us honestly — because we’re listening.

By sharing your experiences and insights, you’re helping us make informed decisions that reflect the needs and values of our community. Stay tuned for updates in July.